Special Surprise Before Surgery

This was me in the waiting area at an outpatient surgery center. I had minor surgery yesterday. Something made a huge difference for me. After I was taken back to the room to be prepped, I noticed Christian music was playing. They had a local Christian radio station on.

As I laid in the prep area listening to worship songs, it was a blessing to pray for people. It was the calmest I have felt in years in a medical facility. Being able to listen too worship songs before surgery was a special suprise.

This weekend will be blogger chat Saturday morning in Zoom, relaxing at home the rest of the day Saturday, church Sunday morning, and coffee shop Sunday afternoon. It will be a weekend to take it easy.

What are your weekend plans?

Thank you for reading. God Bless.

Wellness Wednesday-Pinball Patient Again

The look on the face of a man who was just told he should see two specialists. Okay so I am overacting a bit in the photo. I actually took it before the doctor came the exam room. 🙂

This pinball patient will see a surgeon today about having something removed no big worry. In June I have my appointment with a rheumatologist.

I tried my own home remedy for a finger that is beginning to curve a little from whatever it is that I have. I bought a finger splint. Other than it causing pain when I put it on, nothing else happened. My flawed thinking was if I wore a splint, it would stop it from curving.

So much for my medical career 🙂

So what is a pinball patient? It is a person who is bounced from doctor to doctor kind of like a pinball in a pinball machine. I first wrote about pinball patient 2 years ago in- Pinball Patient.

Hopefully this pinball patient can be patient with the appointments 🙂

Thank you for reading. God Bless.

Full Circle Moment with Doctors for me

This story from my life might seem like a weaving and winding road or better yet a maze or perhaps even a jigsaw puzzle,

Photo by Steven Hylands on Pexels.com

Four years ago I told my GP I thought I had psoriatic arthritis. He said the rash I had was not psoriasis but he wanted me to see an orthopedic specialist about my knee. I went to that specialist who told me knee replacement is in my future but he wanted me to see a rheumatologist to find out why I have widespread pain. I went to the rheumatologist who diagnosed me with Celiacs Disease. So we thought that was it.

Two years ago I had a mild ANA test, so my GP wanted me to go to a rheumatologist. I went to a different one but days before I went there I was put on steroids for bronchitis and the ANA test came back negative there but he did diagnose me with Fibromyalgia and Degenerative Disc in my neck.

So after spending a lot of money on specialists, ones I mentioned in this post and others, I decided at my age what is the point. I decided to stop seeing specialists for rheumatology.

My GP had me see an ophthalmologist late last year who diagnosed me with Sjogrens. I thought well that is enough no need to see anymore specialists.

Lo and behold due to a rash on my elbow that won’t go away I went to a dermatologist yesterday. He found psoriasis in my scalp. my elbow and other spots. The issue that started this winding road 4 years ago has come full circle. I was right, I have psoriasis and next I will go to Omaha to the University Medical Center to see a- you guessed it- rheumatologist. Only this time I will have a diagnosis or two, well five, to take with me.

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Such is the life of a spoonie-person living with chronic illness. We bounce around from doctor to doctor. I am once again a pinball patient.

What keeps me sane? (some may question that) One word- Jesus. If it wasn’t for my prayer time with Jesus I do not know how I would cope with it all.

Thank you for reading. God Bless.

Wellness Wednesday- Women’s History Month

March is Women’s History Month. On Wednesdays this month I am sharing blogs by women living with or dealing with various health issues. The bloggers I am sharing in this post live with serious issues, being a quadriplegic, living with a spinal cord injury, living with autoimmune issues, living with Sickle Cell Anemia and being in hospice care.

Photo by ATC Comm Photo on Pexels.com

Terri of diaryofaquadriplegic.com shares her experience of living as a quadriplegic and shares her faith.

Denise of dmrogers.blog shares her faith and about living with an incomplete spinal cord injury.

Isabel of autoimmunewarrior.org shares about various autoimmune and rare diseases.

poeticjourney521.com shares her faith and life with Sickle Cell Anemia.

Hannah of choosinghope.live shares about being in hospice care in her home and about her life.

Thank you for reading, God Bless.

My first real vlog! All about my new pain treatments and being authentic. It’s a must see! — Tracey’s World , Discover

Hi everyone! I promised that I would start vlogging… I have FINALLY gotten on the bicycle! I’m really excited about it and can’t wait to do the next one but …. I’m still learnimg to ride this bicycle 😆!!! Hopefully a year from more (maybe less) I will look back at my first vlog and […]

My first real vlog! All about my new pain treatments and being authentic. It’s a must see! — Tracey’s World , Discover

Wellness Wednesday- Women’s History Month- Part 4

Living with chronic illness has given me an appreciation for those who share their stories of life with chronic illness. During the month of March, I will share blogs by women who live with chronic illness for my Wellness Wednesday posts.

A purple butterfly is a symbol for some chronic illnesses such as Lupus, Fibromyalgia etc.

Wendi of simplychronicallyill.com. Wendi shares about her multiple chronic illnesses and her life.

Vivi of godswhispersoftruth.wordpress.com She shares her faith and about living with the effects of TBI.

Lily of retrospectivelily.com. . She shares her faith. about llving with Friedreich’s Ataxia, books and more.

Tracey of tracyesworld..com. She shares about living with Lupus and other chronic illnesses.

If you check out their blogs, you will find women with the courage to keep going as best they can while living with chronic illness.

Thank you for reading. God Bless.

Wellness Wednesdays- My New Glasses

This past December, I actually went for an eye exam with an ophthalmologist. Perhaps I should mention that for years my eye exam consisted of me going to a Dollar Store with a piece of paper and checking which pair of $1 reading glasses helped me read better. But I needed to get checked for Sjogren’s Syndrome and had a thorough eye exam.

After he checked my vision, he flipped to three settings and asked if they were clearer. To my surprise they we so much clearer. The result was me ending up with trifocal blended lenses.

It took about two weeks for me to get used to them perhaps because I kept using my $1 pair for working on my computer. But alas those broke forcing me to only use my new glasses. Now I love them.

Why is it that sometimes when it comes to things that will benefit us, we are reluctant to use them? We get used to what is not as good but helps a little and want to keep the status quo.

One thing my fellow spoonies, people who live with chronic illness, will understand is the thought of going to any doctor is stressful. That is due to many reasons such as doctors telling us everything looks good based on blood work, but we are in pain and have other symptoms, doctors not believing us when we talk about symptoms, and the whole maze of getting a diagnosis.

So I avoided eye doctors too. I kind of lumped all doctors together. My discovery was that ophthalmologists are not stressful. I plan to see him once a year.

I am still not convinced I will make the BIG appointment in a city one hour away at the University Medical Center with a rheumatologist. That is the kind of appointment where they poke, prod, do tests, take blood, and tell me they do not see anything. Either that or a diagnosis comes that is life altering such as when I was diagnosed with Hashimotos Hypothyroid, Celiacs, Fibromyalgia, etc.

I think for now I will just enjoy seeing better.

Thank you for reading. God Bless..

Wellness Wednesday-Depression/Anxiety-Jesus Cares

Last week I had a conversation with a colleague I mentor. My colleague is a young person who grew up in a Christian home. My friend struggles with depression/anxiety but is hesitant about seeking help because of the stigma such issues can have in some churches such as the one my friend grew up in.

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It saddens me to think that some churches place a stigma on mental health issues like depression and anxiety. If someone has diabetes, we would encourage them to take insulin and be careful about what they eat. The brain is part of our physical bodies. It is a physical organ just as the heart, lungs, and pancreas are.

That is why I share about how God helped me with depression and anxiety. I live with four chronic illnesses and each of them can cause depression/anxiety on their own. Put all four together, and no wonder depression and anxiety were issues for me. My hope is to lessen the stigma in churches.

My hope is to also share Jesus with others who struggle with depression/anxiety. When I think about things Jesus said such as in Matthew 11:

“Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.”

and what is written about how Jesus felt when he saw the large crowd of people in Matthew 9:

When he saw the crowds, he had compassion on them, because they were harassed and helpless, like sheep without a shepherd.

Such verse help me realize that Jesus has great compassion for us. Such verses also help us to understand how approachable Jesus is when we struggle. His desire is to help us, restore us, and heal us. Yes, he does these things through others such as doctors and counselors too.

Photo by Lukas on Pexels.com

Dear reader if you struggle with depression or anxiety, Jesus understands you, His arms are open saying, “Come to me and find rest” just as he said in Matthew 11. We can cast all of our concerns on him because he cares for us.

It is okay to ask for help.

Thank you for reading. God Bless.