A Small Change I Hope Will Make a Difference

In June 2021, I started taking methotrexate for Psoriatic Arthritis/Psoriasis. I read comments by people on Instagram who take it and referred to the methotrexate hangover, which is not feeling like doing anything the day after. So I took it on Fridays with the thinking that Saturdays can be spent at home if need be.

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The opportunity to help Ukrainian refugees on Saturdays is something I believe God is calling me to do, but then there is that methotrexate hangover thing. So I made a small change. I injected Sunday afternoon. My thinking is that this small change will allow me to help the Ukrainian refugees on Saturdays with worrying about being out of it due to the medication.

I tried it this past Sunday due to the holiday yesterday to give me a trial at it. My thinking is that Mondays I can teach in the morning, come home to rest, and then teach online Monday evenings.

Chronic fatigue is something I always have to factor into my decisions including the after effects of methotrexate. That is just part of life while living with chronic illnesses. I am so grateful Jesus gives me strength.

I am looking forward to this Saturday and spending time with my new friends from Ukraine.

Thank you for reading. God Bless.

Wonderful Weekend, BUT, Then Monday Came

It was a wonderful weekend of visiting people. teaching people, going to church, and lunches. Sunday evening I had plans for Monday morning to get up and get some things done. I had Monday morning off due to fall break at the school where my morning class meets. I planned to go to an In Service, get started on some writing, and run some errands. But then reality interrupted.

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I began the taper down part of my Prednisone prescription Sunday. I had a tapering dosage of 5 days of 3 tablets, 5 days of 2 tablets and 5 days of 1 tablets. 3 tablets is like rocket fuel at time. Tapering down can sometimes mean a let down as far as energy, which for a Spoonie, can lead to more than just feeling tired.

The term Spoonie comes from a young woman who used spoons as an example to explain limited energy while living with chronic illness. You can click on the highlighted Spoonie to read her article.

So Monday I woke up or should I say my eyes opened temporarily. I was down for the count. I had slept 11 hours and was still exhausted. I ended up staying in bed until 11am. When I finally got out of bed, I just sat for quite a while.

I turned on some worship music and gave what was left of the day to Jesus. I checked my blog, checked out post by other bloggers, and drank some coffee.

I prayed over my evening class and went to the college. In my evening class, I have a young woman who is in a wheelchair due to a condition similar to Cerebral Palsy. She has such joy just being able to be in a class. She is a Christian. She gave her presentation and did well. It is my privilege to help her with accommodations she needs to be in class.

A blogger I follow, retrospectivelily.com, wrote about her experience getting accommodations in college for her disability. The post is Disability Chat. Each evening I see my student in class, Lily’s article comes to mind.

So Monday I may not have accomplished much, but I was grateful to be there for my students in the evening. Tuesday was better. Hopefully today will be better still. My post is not much of an inspiration today, but I am mindful of a quote Big Sky Buckeye shared by Charles Kingsley:

Make it a rule, and pray to God to help you to keep it, never to lie down at night without being able to say, “I have made at least one human being a little wiser, a little happier, or a little better this day.”

Monday may have been a wash for most of the day for me, but at least I made the young woman in class a little happier, wiser, and better that day.

Thank you for reading. God Bless.