This story from my life might seem like a weaving and winding road or better yet a maze or perhaps even a jigsaw puzzle,
Four years ago I told my GP I thought I had psoriatic arthritis. He said the rash I had was not psoriasis but he wanted me to see an orthopedic specialist about my knee. I went to that specialist who told me knee replacement is in my future but he wanted me to see a rheumatologist to find out why I have widespread pain. I went to the rheumatologist who diagnosed me with Celiacs Disease. So we thought that was it.
Two years ago I had a mild ANA test, so my GP wanted me to go to a rheumatologist. I went to a different one but days before I went there I was put on steroids for bronchitis and the ANA test came back negative there but he did diagnose me with Fibromyalgia and Degenerative Disc in my neck.
So after spending a lot of money on specialists, ones I mentioned in this post and others, I decided at my age what is the point. I decided to stop seeing specialists for rheumatology.
My GP had me see an ophthalmologist late last year who diagnosed me with Sjogrens. I thought well that is enough no need to see anymore specialists.
Lo and behold due to a rash on my elbow that won’t go away I went to a dermatologist yesterday. He found psoriasis in my scalp. my elbow and other spots. The issue that started this winding road 4 years ago has come full circle. I was right, I have psoriasis and next I will go to Omaha to the University Medical Center to see a- you guessed it- rheumatologist. Only this time I will have a diagnosis or two, well five, to take with me.
Such is the life of a spoonie-person living with chronic illness. We bounce around from doctor to doctor. I am once again a pinball patient.
What keeps me sane? (some may question that) One word- Jesus. If it wasn’t for my prayer time with Jesus I do not know how I would cope with it all.
Thank you for reading. God Bless.
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