Living with Chronic Illness-A Typical Day for a Spoonie

Just thought I would share a typical day in the summer for me as a person living with chronic illness or as people with chronic illness say- A Spoonie.

Summer time means more relaxation time for me. I only teach one evening class twice a week and meet with private tutoring students four times a week. Here in Nebraska it also means heat waves of not only high temperatures but also high humidity, so I prefer to stay indoors in the afternoons and evenings and enjoy the air conditioning, I used to love hot summer days, but life with chronic illness means that heat gets to me now.

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Yesterday I spent time at a local coffee shop called Meadowlark. Meadowlark has Moroccan Mint Iced Tea and I am hooked on it. I can see a lot of interesting people in this coffee shop. People from all walks of life come to Meadowlark.

There was one young lady, Kendra, who had a bible on her table. When I see someone with a bible in a coffee shop, I like to walk by and say-“I read that book. In the end Jesus wins. Oh sorry, I gave away the ending.” It gets a smile and laugh every time..

Then it was off to the library to meet Karen from Mexico for a private tutoring session. She is a yoga instructor and wants to do that here. I am helping her prepare for that. Karen and her husband have two dogs and when I visit their home, one of their dogs goes crazy being happy to see me.

The day started slowly. I woke up still feeling tired which is a reality for anyone with chronic illness. For some reason the pain is more in my feet this week. It kind of rotates. But worship music gets me going. I love to listen to worship music in the morning. One nice thing about having my mornings free in the summer is that I can have more time with Jesus to start my day.

One of my evening classes was canceled due to low registration. It is only the second time in 20 years that has happened. It will mean tight budget for a few months, but it seems Jesus is telling me to slow down a bit for the summer. So yesterday I did exactly that.

People with chronic illness understand the spoon theory. It started with a young woman Christine Miseradino who used spoons to explain to a friend about low energy while living with chronic illness. Basically most people don’t worry about energy level, but life with chronic illness means we have limited energy and fatigue can set in at any time.

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So while it may not sound like a big deal to go to a coffee shop and a library on a hot summer day, for me such days are fun to enjoy.

Thank you for reading. God Bless.

26 thoughts on “Living with Chronic Illness-A Typical Day for a Spoonie

  1. Thank you for sharing your day big brother. I am also intrigued to hear you live in Nebraska, Iโ€™ve never been to that state, were you born and raised there?

  2. May the Lord God continue to give you strength each day.. You inspire me each and everyday. Know this Big Brother Lord God wants you to take a seat and rest… Enjoy this summer time…. โค๏ธ

  3. Thanks for sharing the story about spoons. It was interesting and helped me to understand better about chronic illness sufferers. Good health should never be taken for granted. I often thank God for little things like being able to shower and brush my teeth because for many itโ€™s a struggle or even impossible for them to do it alone. Thanks also for sharing your day! That tea looks really good. ๐Ÿ˜‹ Praying God continues to give you strength ๐Ÿ™๐Ÿฟ

  4. Your day seem quite interesting and I am glad you enjoyed it. Thank you for sharing the article on spoon. It was an eye opener. May God continue to strengthen you, my brother.

  5. Praying for you brother! Living with pain is tough.๐Ÿ˜ฅ And I love what you say to people you see with their bibles! I do believe I will use that! That is awesome! Thanks for this great post! ๐Ÿ˜„

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