A spoonie is someone who lives with chronic illness and the accompanying fatigue.
I sat down and did something maybe I should not have done. I added up the money I have spent on seeing various kinds of specialists over the past five years and realized I could have bought a new car like maybe a Kia Soul.
The results have been getting diagnosed with Celiacs and Fibromyalgia so far but those do not explain all of the symptoms I experience. There are only 2 Rheumatology clinics in my city. One is nearly impossible to get an appointment sooner than 3 months out and is the one who diagnosed me with Celiacs. The other I won’t go back to because he said, “at your age something would have shown up by now.” Statistically speaking about 30% of various autoimmune problems are diagnosed in people in their 50s and 60s.
So I decided to stop seeking help from Rheumatologists and just live with it all unless later in the year I go to the University of Nebraska Medical Center. But I doubt I will. It is that whole could have bought a new car thing with my van being 13 years old.
I will deal with the flare ups which include the recurring rashes a Dermatologist did not know what they are and said go to a Rheumatologist. I will be glad to take naps to lessen fatigue. I will stop googling symptoms to see what they could mean. I am taking myself out of the Pinball Patient machine.
Enough is enough for this spoonie.
Jesus has given me the strength to carry on with life for over 25 years. I will trust him to do so with my remaining years in this life.
Thank you for reading. God Bless.
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