A Glimpse into My Spoonie Life- Chronic Illness

Living with Chronic Illness presents me with minor inconveniences and also major obstacles at times. My hope is to handle either scenario with God’s grace and to extend grace to others. It also entails extending grace to myself, because let me tell you, I do not always have patience with obstacles in my way. I used to play American football when I was younger and the mentality of run through obstacles stays with me at times.

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A minor one happened yesterday. One of my chronic illnesses and the one I find easiest to manage is Celiacs Disease. I have done well with being gluten free in my diet since I was diagnosed. But there are times it can be socially awkward.

Yesterday one of the moms in my class was so kind to offer me a piece of cake. She did not know I have Celiacs. I explained to her why I can’t eat cake. I did not leave it at that. I also told her that she was so nice to think of me and bring me the cake and that I really appreciated that. She smiled when I said that to her. It is a small thing for me, but to her for her teacher to say that meant a lot.

The major obstacles are the ones that I resist the most. Due to difficulties from Degenerative Disc Disease stemming from an accident when I was younger, and the pain I am always in from Fibromyalgia, I could probably get a permit for my car for handicapped parking. But I do not want to let it win. By it I mean Chronic Illness.

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Funny though that I readily accept the need to naps in the afternoon due to fatigue. Fatigue is one of my constant uninvited guests. I love naps. As I round the corner financially, my hope is to get a comfortable recliner for my home office chair. Then I can sit at my desk, which is really a 5 foot table, and work and write but take a nap as need be. It is one of my dreams. πŸ™‚

I can’t imagine going through all of this without Jesus. If this life was all I had, I would not feel any hope. But with Jesus there is always hope. By giving him whatever we experience, he can do amazing things.

Just a glimpse into my life with Chronic Illness. My wish is to help readers understand what people they may know go through.

Thank you for reading. God Bless.

49 thoughts on “A Glimpse into My Spoonie Life- Chronic Illness

  1. We share the same chronic illness. 😣 I too have to eat gluten free and have back pain due to a fall many years ago, plus I have fibromyalgia. My doctor told me to exercise often, which really helps. I invested in a pilates equipment, which helps tremendously. This equipment stretches your body using your own body weigh, which in turn exercises your muscles. The equipment doesn’t heal the chronic pain, but it does eliminate a lot of it. I know what you mean about the fatigue, I try to fight through it and watch the amount of sugar I consume. Actually, I stopped using sugar accept sugars found naturally in foods. 😊

    Let’s keep each other in prayer.πŸ™

      1. I will definitely pray for you.

        I received my bracelet from the Hero Bands as you suggested. My says “Blessed”😊

        I may order one for each of my granddaughters. 😊

  2. May God keep you and strengthen you. I am glad that you have found Jesus; life’s tough journey is manageable through Christ. He said He will never leave us nor forsake us. God is with you, and He will continue to pull through for you. Thank you for sharing this hard journeyβ€”many blessings to you.

  3. Brother Matt….you are an inspiration to all. You have always been so kind thoughtful and helpful despite the pain and fatigue you experience. It truly is God’s grace. May you continue to be a light to us all….I am truly inspired by you….the way you smile and find hope and joy in almost everything and then spread it ….may God bless you abundantlyπŸ™πŸΌπŸΌ βœοΈπŸ™πŸΌπŸ’πŸŽ€πŸ€©

      1. She is not doing well, she has had a lot of pain in her legs and trouble with walking and trying to dress herself, she is seeing a neurologist who believes she has a muscle disease which could of been cause from one of her other diseases, she goes for another test next week. Thank you for asking

  4. Thank you for sharing this post. I suffer from Bipolar Disorder and am on ten tablets a day, I also have days where I struggle with feeling extremely exhausted at times, but really it’s just the strong sedation from the medication I have to take every day. Some times I get so angry and upset about my condition, but when I run to God, he shows me how he has used my condition to bring me to Jesus Christ in the first place and also how I can bless others through my weakness with this condition. God bless you.

  5. Praying for you, sir. It is very difficult fighting chronic illness every day. Celiac has really been beating me down lately. I haven’t been blogging consistently because of it. Praise God for the strength He gives us! I wouldn’t be here without Jesus. God bless!

  6. Thank you for sharing your experiences to help others of us understand. Blessings and I hope you get your recliner! I have to eat gluten-free and I understand that much – i teach a Kurdish speaking Iraqi lady and she always bakes me wonderful delicacies… i have tried to explain, but often accept them gracefully and take them home to my grateful sons!

  7. Love that you have Jesus for your hope and encouragement! I’m so sorry you experience that but I see Jesus in you and your friendly, humorous attitude is contagious!!

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